Description
This website has been developed following feedback from parents of young people who attended the Rainbows Hospice for Children and Young People, and faced real challenges around continued decision-making for their children once they reached adulthood.
As a result, monies from the NHS England Mental Capacity Act (MCA) Improvement Programme provided the funding to support a workshop for parents and carers of young people from across the East Midlands who had entered adulthood never having the capacity to make their own decisions.
The funding also helped to support the development of this website – a tool aimed to support parents so that they better understand their rights and options in decision-making as they continue to love and care for their adult child.
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