Contact phone
01246 912 421 (available 10.30am - 3.30pm Monday to Friday)Contact email
info@dravet.org.ukWebsite
https://www.dravet.org.uk/Description
We are an independent charity and the only UK organisation dedicated to improving the lives of those affected by Dravet Syndrome.
Dravet Syndrome is a complex and devastating condition. Living with a child or adult who has Dravet Syndrome can be a very difficult and potentially isolating experience for families. From a medical perspective, there is an urgent need for more research into the causes and complexities of the condition, in order to identify more effective approaches to diagnosis and treatment.
Dravet Syndrome is a rare, genetic neurological condition, occurring in 1/15,000 live births in the UK. The condition causes treatment-resistant epilepsy & intellectual disability alongside a spectrum of associated conditions including autism, ADHD, challenging behaviour, difficulties with speech, mobility, feeding & sleep.
Dravet Syndrome UK is the only UK charity dedicated to improving the lives of those affected by Dravet Syndrome.
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